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When Your Child Has MS – Episode 118 – Transcript
Listen to this episode of the Can Do MS Podcast and you will hear the story of two mothers whose children were diagnosed with MS in their mid-to-late teens.
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Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1 – Episode 92 – Transcript
Join us for this two-part conversation with Dr. Scott Newsome on his journey from being a MS caregiver to becoming a MS provider and researcher. In today’s episode, we’ll hear from Dr. Newsome about his experiences as an MS caregiver and support partner to his mother, who had multiple sclerosis during Dr. Newsome’s childhood and formative years. Dr. Newsome will share what it was like to have a parent with MS and the ultimate impact that the caregiver role had for him and his future.
Caregivers also experience MS, clearly differently than the person who carries the diagnosis but experiencing the diagnosis and their own issues, nonetheless. Caregivers can experience significant stress, lack of knowledge, fatigue, role change, role confusion, and even guilt. While they want to be the best support they can be, they do not have a roadmap or guide that tells them what to do. The role of the caregiver is often underrecognized and under-supported. MS is a “we” disease not a “me” disease. Learn more about support partner resources and upcoming programming.
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Talking Self-Care With Jon Strum – Episode 40 – Transcript
Being a care partner has been a central role in Jon Strum’s life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we’ll hear from Jon about the drastic effects of MS, not just in his wife’s life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.
