Category Archives: Support Partner Voices

MS is a “we” disease, not a “me” disease.
It affects not just the person with MS, but also their family, friends, and others who support and care for them.

The role of a support partner in the life of someone with MS is pivotal. Together, we can embrace and uplift these caring individuals! This resource center is here to help support partners with their unique needs and challenges.

Caring and Curating – A Support Partner’s Journey



Caring and Curating – A Support Partner’s Journey – Episode 41 – Transcript

No one has it all figured out—and that’s OK! In today’s podcast, hear one support partner’s journey as she has navigated life in “the sandwich generation,” caring for her husband with MS, daughter, and parents. It’s not without its challenges, but curating her family’s life with MS has allowed Cindy to focus on what’s always been there: loyalty, love, and friendship.


Talking Self-Care With Jon Strum



Talking Self-Care With Jon Strum – Episode 40 – Transcript

Being a care partner has been a central role in Jon Strum’s life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we’ll hear from Jon about the drastic effects of MS, not just in his wife’s life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.


Managing Bowel and Bladder Symptoms



Managing Bowel and Bladder Symptoms – Episode 37 – Transcript

Some of the most challenging symptoms in MS can be bowel and bladder-related issues. Join us as we talk to our guests, Randy and Sue, about the bowel and bladder-related challenges Randy has experienced since his MS diagnosis, the management strategies they have found useful and suitable for their lifestyle, and the importance of self-advocacy.

For additional resources on bowel and bladder symptoms, please visit our website at the following link: https://www.cando-ms.org/online-resources/bowel-and-bladder.


When Your Child Has MS



When Your Child Has MS – Episode 29 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?


Praising Partnerships



Praising Partnerships – Episode 12 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?

Join physical therapist Mandy Rohrig and couple Dave and Laura as they discuss how Dave’s MS diagnosis has changed the dynamics of their relationship over time. They recently celebrated their 31st anniversary, but Dave’s diagnosis came after being married for several years. Listen as they dissect what and how things have changed between them, and how having a thorough understanding of your partner can make all the difference.


Growing Together



Growing Together – Episode 11 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?

Join physical therapist Mandy Rohrig and couple Caroline and Tim as they discuss the challenges of navigating Caroline’s MS. Prior to meeting two years ago, Tim knew very little about MS. Listen to hear how their deep love for one another and honest, effective communication strategies have propelled them to grow closer than ever in the face of Caroline’s diagnosis.


Relapse and MS Series: Balancing Relationships and Open Communication During a Relapse



Relapse and MS Series: Balancing Relationships and Open Communication During a Relapse – Episode 10 – Transcript

This podcast is the final episode in our 3 Part Relapse and MS Series, where you’ll learn how to manage potential relapse related challenges at home, work and in your relationships.

In this podcast, you’ll hear from a couple living with MS, Laura and Michael, as they share their experiences on how MS relapses have impacted their relationship as a couple, as well as their relationships with family and friends. This discussion will be led by psychologist Roz Kalb.


Relationships & Planning for a Future with MS



Relationships & Planning for a Future with MS – Episode 6 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS.  It takes a special person to care for and support someone with MS, but who is taking care of your needs?

Join psychologist Meghan Beier and couple Mark and Lynne Forette as they discuss how their relationship was impacted by Mark’s MS diagnosis and how it affected their future planning. They’ll also share some real life stories about how they adjusted for a future with MS and where they turned to for support.


Prioritizing Your Emotional and Physical Well-Being



Prioritizing Your Emotional and Physical Well-Being – Episode 5 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS.  Do you ever feel that your own health and wellness needs are neglected or overlooked?  It takes a special person to care for and support someone with MS, but who is taking care of your needs?

Join psychologist Meghan Beier, physical therapist Mandy Rohrig, and support partner Malcolm Newton as they discuss barriers he faces when it comes to prioritizing his own health and how he maintains his emotional and physical well-being while caring for his wife with MS.


Managing Mood & Cognitive Changes in Your Loved One



Managing Mood & Cognitive Changes in Your Loved One – Episode 4 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS.  Do you ever feel that your own health and wellness needs are neglected or overlooked?  It takes a special person to care for and support someone with MS, but who is taking care of your needs?

One need that is often overlooked is coping and adapting to mood and cognitive changes that are common in MS.  Up to 65% of people with MS experience changes in their thinking skills and approximately 50% experience mood changes, including anxiety and depression. For support partners, these changing life circumstances can impact their own mood and cognitive well-being.

Join psychologist Meghan Beier and support partner Karen Peterson to discuss strategies to recognize mood and cognitive changes in your partner and yourselves, where to turn for help, and tools to adapt in everyday life.