Category Archives: Support Partner Voices

MS is a “we” disease, not a “me” disease.
It affects not just the person with MS, but also their family, friends, and others who support and care for them.

The role of a support partner in the life of someone with MS is pivotal. Together, we can embrace and uplift these caring individuals! This resource center is here to help support partners with their unique needs and challenges.

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 2



Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 2 – Episode 97 – Transcript

Join us for the second part of our conversation with Dr. Scott Newsome. On this episode, Dr. Newsome will be back to talk about how his role as an MS caregiver has impacted his career today as an MS specialist. We’ll also learn more about what Dr. Newsome has been focusing on and his exciting current research.

As promised, learn more about the current clinical trial that Dr. Newsome is working on, the TREAT-MS Clinical Trial for Multiple Sclerosis Patients.The TRaditional versus Early Aggressive Therapy for Multiple Sclerosis (TREAT-MS) Trial will help inform patients and the broader healthcare community on whether patients would most benefit from early, possibly more risky aggressive therapy or if starting with a less aggressive (and, often, less risky) therapy, followed by a switch if breakthrough disease activity occurs, is warranted. In addition, this study will help identify if there is a specific patient population or short-term biomarker(s) that is strongly predictive of long-term disability that can result from MS. For a deeper dive, view the Neurology Live video: Peers and Perspectives: The Induction vs. Escalation Approach to MS and the TREAT-MS Trial or you can also email TREAT-MS at treatms@jhmi.edu.


Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1



Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1 – Episode 92 – Transcript

Join us for this two-part conversation with Dr. Scott Newsome on his journey from being a MS caregiver to becoming a MS provider and researcher. In today’s episode, we’ll hear from Dr. Newsome about his experiences as an MS caregiver and support partner to his mother, who had multiple sclerosis during Dr. Newsome’s childhood and formative years. Dr. Newsome will share what it was like to have a parent with MS and the ultimate impact that the caregiver role had for him and his future.

Caregivers also experience MS, clearly differently than the person who carries the diagnosis but experiencing the diagnosis and their own issues, nonetheless. Caregivers can experience significant stress, lack of knowledge, fatigue, role change, role confusion, and even guilt. While they want to be the best support they can be, they do not have a roadmap or guide that tells them what to do. The role of the caregiver is often underrecognized and under-supported. MS is a “we” disease not a “me” disease. Learn more about support partner resources and upcoming programming.


Caring and Curating – A Support Partner’s Journey



Caring and Curating – A Support Partner’s Journey – Episode 41 – Transcript

No one has it all figured out—and that’s OK! In today’s podcast, hear one support partner’s journey as she has navigated life in “the sandwich generation,” caring for her husband with MS, daughter, and parents. It’s not without its challenges, but curating her family’s life with MS has allowed Cindy to focus on what’s always been there: loyalty, love, and friendship.


Talking Self-Care With Jon Strum



Talking Self-Care With Jon Strum – Episode 40 – Transcript

Being a care partner has been a central role in Jon Strum’s life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we’ll hear from Jon about the drastic effects of MS, not just in his wife’s life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.


Managing Bowel and Bladder Symptoms



Managing Bowel and Bladder Symptoms – Episode 37 – Transcript

Some of the most challenging symptoms in MS can be bowel and bladder-related issues. Join us as we talk to our guests, Randy and Sue, about the bowel and bladder-related challenges Randy has experienced since his MS diagnosis, the management strategies they have found useful and suitable for their lifestyle, and the importance of self-advocacy.

For additional resources on bowel and bladder symptoms, please visit our website at the following link: https://www.cando-ms.org/online-resources/bowel-and-bladder.


When Your Child Has MS



When Your Child Has MS – Episode 29 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?


Praising Partnerships



Praising Partnerships – Episode 12 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?

Join physical therapist Mandy Rohrig and couple Dave and Laura as they discuss how Dave’s MS diagnosis has changed the dynamics of their relationship over time. They recently celebrated their 31st anniversary, but Dave’s diagnosis came after being married for several years. Listen as they dissect what and how things have changed between them, and how having a thorough understanding of your partner can make all the difference.


Growing Together



Growing Together – Episode 11 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?

Join physical therapist Mandy Rohrig and couple Caroline and Tim as they discuss the challenges of navigating Caroline’s MS. Prior to meeting two years ago, Tim knew very little about MS. Listen to hear how their deep love for one another and honest, effective communication strategies have propelled them to grow closer than ever in the face of Caroline’s diagnosis.


Relapse and MS Series: Balancing Relationships and Open Communication During a Relapse



Relapse and MS Series: Balancing Relationships and Open Communication During a Relapse – Episode 10 – Transcript

This podcast is the final episode in our 3 Part Relapse and MS Series, where you’ll learn how to manage potential relapse related challenges at home, work and in your relationships.

In this podcast, you’ll hear from a couple living with MS, Laura and Michael, as they share their experiences on how MS relapses have impacted their relationship as a couple, as well as their relationships with family and friends. This discussion will be led by psychologist Roz Kalb.


Relationships & Planning for a Future with MS



Relationships & Planning for a Future with MS – Episode 6 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS.  It takes a special person to care for and support someone with MS, but who is taking care of your needs?

Join psychologist Meghan Beier and couple Mark and Lynne Forette as they discuss how their relationship was impacted by Mark’s MS diagnosis and how it affected their future planning. They’ll also share some real life stories about how they adjusted for a future with MS and where they turned to for support.