Category: Can Do MS Interviews

Figure It Out: Adaptations and Staying Active

Figure It Out: Adaptations and Staying Active

Figure It Out: Adaptations and Staying Active – Episode 150 – Transcript

In this episode, we’re excited to feature our guest and past program participant, Danica King, who is thriving with MS thanks to her amazing ability to “figure it out.” We’re excited to have Danica on this episode while we celebrate Can Do Month, which is in honor of our founder Jimmie Heuga. Jimmie wore many hats including that of an athlete, Olympian, husband, father, and pioneer in the MS Community. Jimmie was all about discovering what you “Can Do” to be able to enjoy the things you love and even try new adventures while living with MS. There are a lot of parallels between Jimmie’s Can Do Spirit and Danica’s own story. Danica is passionate about adaptive sports and has participated in many sports and activities. Through her story she encourages us to “figure it out” whether that’s seeking out adaptive equipment or asking for help. You can check out more of Danica’s story in her book Figure It Out: Snapshots Of My Journey With Multiple Sclerosis and follow her on Instagram @FigureItOutMS

Thank you to Biogen and Viatris for their support of Can Do Month and this podcast episode.

In this episode we mention a variety of resources, a few are below for your reference.

Artist, Rebel, and Progressive MS Warrior

Artist, Rebel, and Progressive MS Warrior

Artist, Rebel, and Progressive MS Warrior – Episode 146 – Transcript

Meet street artist, rebel, and progressive MS warrior Lydia Emily. She shares her life with us including the story of her MS diagnosis, adaptations she made, and some stories and experiences from creating art. Lydia Emily’s approach to her MS is real and refreshing. She sees strength in seeking out adaptations, asking for help, and making the adjustments needed to live a happy and easier life with MS. Keep your eye out for Lydia Emily’s upcoming book The Art of Hope. You can learn more about Lydia Emily and her art via her website – https://lydiaemily.com/ and her Instagram @lydiaemily.

 

The Ups and Downs of Medication Adherence

The Ups and Downs of Medication Adherence

The Ups and Downs of Medication Adherence – Episode 134 – Transcript

In this episode of the Can Do MS podcast, we host CenterWell Specialty Pharmacy™ pharmacist Megan Winebrenner to discuss why it’s important for people with MS to stick with their medications. Learn about the barriers that can prevent people from taking their medication as prescribed and what strategies and resources are available to help.

Learn more about CenterWell and the role of the specialty pharmacy in MS care by viewing these resources:

 

Disclaimer:  This program provides general educational information.  Can Do MS does not endorse, promote, or recommend CenterWell Specialty Pharmacy or any product or service associated with the content of this program. All product names, logos, brands and trademarks are property of their respective owners, and any use does not imply endorsement.

Meet the Host: Stephanie Buxhoeveden

Meet the Host: Stephanie Buxhoeveden

Meet the Host: Stephanie Buxhoeveden – Episode 123 – Transcript

Meet the new host of the Can Do MS Podcast, Stephanie Buxhoeveden! Stephanie comes to us with open eyes and a multitude of unique perspectives as an MS Nurse Practitioner, MS researcher, and a as person living with MS.

In this episode, we will hear about Stephanie’s life and why she’s the perfect person to host the Can Do MS Podcast. She’ll share the story of her MS diagnosis, the challenges she has faced, the adaptations she has made, and how she lives her best life with MS.  Stephanie talks about the details of her personal relationships, professional life, and what the future holds for her and the hope she has for the next generation of people diagnosed with MS. Welcome, Stephanie!

Dr. Terry Wahls: A Look At Current Research – Part 2

Dr. Terry Wahls: A Look At Current Research – Part 2

Dr. Terry Wahls: A Look At Current Research – Episode 112 – Transcript

Join us for the second part of our conversation with Dr. Terry Wahls. In this episode, we’ll hear about Dr. Wahls’ own journey with MS and how her extensive research on diet and nutrition came to be. Dr. Wahls will also explain her current research and clinical trial, The Efficacy of Diet on Quality of Life in MS.
What is the best diet to have if you have been diagnosed with MS? Is there a specific MS diet? What exactly is quality of life? These are some of the questions Dr. Wahls is hoping to answer in her new clinical study. Listen in to get the details about the research project as well as ways people living with MS can apply to get involved.
Dr. Terry Wahls: MS Wellness and this Radical Thing Called Vegetables – Part 1

Dr. Terry Wahls: MS Wellness and this Radical Thing Called Vegetables – Part 1

Dr. Terry Wahls: MS Wellness and this Radical Thing Called Vegetables – Episode 107 – Transcript

Dr. Terry Wahls is a leading researcher on the impact of nutrition and lifestyle changes on MS and other autoimmune conditions. Join Roz Kalb as she interviews Dr. Wahls in the first of a two-episode conversation. In this episode, Dr. Wahls talks about the importance of overall health and wellness as well as her research on nutrition.

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 2

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 2

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 2 – Episode 97 – Transcript

Join us for the second part of our conversation with Dr. Scott Newsome. On this episode, Dr. Newsome will be back to talk about how his role as an MS caregiver has impacted his career today as an MS specialist. We’ll also learn more about what Dr. Newsome has been focusing on and his exciting current research.

As promised, learn more about the current clinical trial that Dr. Newsome is working on, the TREAT-MS Clinical Trial for Multiple Sclerosis Patients.The TRaditional versus Early Aggressive Therapy for Multiple Sclerosis (TREAT-MS) Trial will help inform patients and the broader healthcare community on whether patients would most benefit from early, possibly more risky aggressive therapy or if starting with a less aggressive (and, often, less risky) therapy, followed by a switch if breakthrough disease activity occurs, is warranted. In addition, this study will help identify if there is a specific patient population or short-term biomarker(s) that is strongly predictive of long-term disability that can result from MS. For a deeper dive, view the Neurology Live video: Peers and Perspectives: The Induction vs. Escalation Approach to MS and the TREAT-MS Trial or you can also email TREAT-MS at treatms@jhmi.edu.

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1

Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1 – Episode 92 – Transcript

Join us for this two-part conversation with Dr. Scott Newsome on his journey from being a MS caregiver to becoming a MS provider and researcher. In today’s episode, we’ll hear from Dr. Newsome about his experiences as an MS caregiver and support partner to his mother, who had multiple sclerosis during Dr. Newsome’s childhood and formative years. Dr. Newsome will share what it was like to have a parent with MS and the ultimate impact that the caregiver role had for him and his future.

Caregivers also experience MS, clearly differently than the person who carries the diagnosis but experiencing the diagnosis and their own issues, nonetheless. Caregivers can experience significant stress, lack of knowledge, fatigue, role change, role confusion, and even guilt. While they want to be the best support they can be, they do not have a roadmap or guide that tells them what to do. The role of the caregiver is often underrecognized and under-supported. MS is a “we” disease not a “me” disease. Learn more about support partner resources and upcoming programming.

Can Do Month: Learning the Legacy of Jimmie Heuga with Blaze Heuga and Tyler Hamilton

Can Do Month: Learning the Legacy of Jimmie Heuga with Blaze Heuga and Tyler Hamilton

Can Do Month: Learning the Legacy of Jimmie Heuga with Blaze Heuga and Tyler Hamilton – Episode 86 – Transcript

Throughout September, we celebrate Can Do Month in honor of our founder and Olympic ski medalist, Jimmie Heuga. For this episode of the Can Do MS Podcast, host Mandy Rohrig welcomes guests Blaze Heuga and Tyler Hamilton to share their memories and the impact that Jimmie Heuga’s legacy has had on them and continues to have around the world through the work and impact of Can Do MS.

Vitamin D and Other Supplements: What You Need To Know

Vitamin D and Other Supplements: What You Need To Know

Vitamin D and Other Supplements: What You Need To Know – Episode 81 – Transcript

Dr. Ilana Katz Sand is back to share her expertise with us on another episode of the Can Do MS Podcast. This time the conversation will focus on vitamin D and other supplements. What should you know when it comes to vitamin D and MS? Does vitamin D play a role in disease course? What is the best way to get your vitamin D? What should be considered when it comes to other supplements? Listen to this episode to learn the answer to these questions and more!