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When Your Child Has MS – Episode 118 – Transcript
Listen to this episode of the Can Do MS Podcast and you will hear the story of two mothers whose children were diagnosed with MS in their mid-to-late teens.
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Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 2 – Episode 97 – Transcript
Join us for the second part of our conversation with Dr. Scott Newsome. On this episode, Dr. Newsome will be back to talk about how his role as an MS caregiver has impacted his career today as an MS specialist. We’ll also learn more about what Dr. Newsome has been focusing on and his exciting current research.
As promised, learn more about the current clinical trial that Dr. Newsome is working on, the TREAT-MS Clinical Trial for Multiple Sclerosis Patients.The TRaditional versus Early Aggressive Therapy for Multiple Sclerosis (TREAT-MS) Trial will help inform patients and the broader healthcare community on whether patients would most benefit from early, possibly more risky aggressive therapy or if starting with a less aggressive (and, often, less risky) therapy, followed by a switch if breakthrough disease activity occurs, is warranted. In addition, this study will help identify if there is a specific patient population or short-term biomarker(s) that is strongly predictive of long-term disability that can result from MS. For a deeper dive, view the Neurology Live video: Peers and Perspectives: The Induction vs. Escalation Approach to MS and the TREAT-MS Trial or you can also email TREAT-MS at treatms@jhmi.edu.
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Dr. Scott Newsome’s Story: The Road From Caregiver to MS Provider and Researcher – Part 1 – Episode 92 – Transcript
Join us for this two-part conversation with Dr. Scott Newsome on his journey from being a MS caregiver to becoming a MS provider and researcher. In today’s episode, we’ll hear from Dr. Newsome about his experiences as an MS caregiver and support partner to his mother, who had multiple sclerosis during Dr. Newsome’s childhood and formative years. Dr. Newsome will share what it was like to have a parent with MS and the ultimate impact that the caregiver role had for him and his future.
Caregivers also experience MS, clearly differently than the person who carries the diagnosis but experiencing the diagnosis and their own issues, nonetheless. Caregivers can experience significant stress, lack of knowledge, fatigue, role change, role confusion, and even guilt. While they want to be the best support they can be, they do not have a roadmap or guide that tells them what to do. The role of the caregiver is often underrecognized and under-supported. MS is a “we” disease not a “me” disease. Learn more about support partner resources and upcoming programming.
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Talking Self-Care With Jon Strum – Episode 40 – Transcript
Being a care partner has been a central role in Jon Strum’s life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we’ll hear from Jon about the drastic effects of MS, not just in his wife’s life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.
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When Your Child Has MS – Episode 29 – Transcript
Are you someone who provides support to a loved one living with MS? As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?
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Supporting a Spouse; Supporting Yourself – Episode 28 – Transcript
Are you someone who provides support to a loved one living with MS? As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?
In this podcast, you’ll hear from two support partners, Matt and Warren, as they share their experiences. They’ll discuss how roles evolve over time and the importance of supporting yourself while supporting your loved one with MS. This discussion will be led by psychologist Roz Kalb.
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Relationships & Planning for a Future with MS – Episode 6 – Transcript
Are you someone who provides support to a loved one living with MS? As a support partner, you often focus solely on the needs of your loved one with MS. It takes a special person to care for and support someone with MS, but who is taking care of your needs?
Join psychologist Meghan Beier and couple Mark and Lynne Forette as they discuss how their relationship was impacted by Mark’s MS diagnosis and how it affected their future planning. They’ll also share some real life stories about how they adjusted for a future with MS and where they turned to for support.
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Prioritizing Your Emotional and Physical Well-Being – Episode 5 – Transcript
Are you someone who provides support to a loved one living with MS? As a support partner, you often focus solely on the needs of your loved one with MS. Do you ever feel that your own health and wellness needs are neglected or overlooked? It takes a special person to care for and support someone with MS, but who is taking care of your needs?
Join psychologist Meghan Beier, physical therapist Mandy Rohrig, and support partner Malcolm Newton as they discuss barriers he faces when it comes to prioritizing his own health and how he maintains his emotional and physical well-being while caring for his wife with MS.
