Tag: Multiple Sclerosis

Race, Representation, and Redefining What Sick Looks Like

Race, Representation, and Redefining What Sick Looks Like

Race, Representation, and Redefining What Sick Looks Like – Episode 49 – Transcript

Victoria Reese is Co-Founder and CEO of We Are Ill, a nonprofit organization for Black women with MS that provides support, sisterhood, and a space to learn from one another (something she couldn’t find upon her own MS diagnosis). Today, Victoria fosters this community and helps others become a “professional patient.” By being as knowledgeable as possible about your illness, you can be an active decision-maker in the healthcare setting, and one day feel empowered to say “I have MS but MS does not have me.”

Learn more about We Are ILL.

Learn more about TAKE CHARGE- Uncharted Territory.

Mindful Moments: Week 7

Mindful Moments: Week 7

Mindful Moments: Week 7 – Episode 48 – Transcript

Worry does not serve me. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

Mindful Moments: Week 6

Mindful Moments: Week 6

Mindful Moments: Week 6 – Episode 47 – Transcript

I am not missing out when I put my phone down. Tap into the power of this mantra with Megan Weigel, Nurse Practitioner and MS-Certified Nurse, and discover a mindful moment for yourself.

Mindful Moments: Week 2

Mindful Moments: Week 2

Mindful Moments: Week 2 – Episode 43 – Transcript

Mantras are powerful tools to focus your mind and enrich your spirit. They allow you to learn and embody truths about yourself. Join Megan Weigel, nurse practitioner and MS certified-nurse for Mindful Moments, a new series brought to you by the Can Do MS Podcast. Every Monday starting in 2022, Megan will introduce you to a mantra to start the week off right, allowing you to free your mind – even just for a moment – from the confining feelings of MS.

Week 2 Mantra: I find calm with my breath.

Caring and Curating – A Support Partner’s Journey

Caring and Curating – A Support Partner’s Journey

Caring and Curating – A Support Partner’s Journey – Episode 41 – Transcript

No one has it all figured out—and that’s OK! In today’s podcast, hear one support partner’s journey as she has navigated life in “the sandwich generation,” caring for her husband with MS, daughter, and parents. It’s not without its challenges, but curating her family’s life with MS has allowed Cindy to focus on what’s always been there: loyalty, love, and friendship.

Talking Self-Care With Jon Strum

Talking Self-Care With Jon Strum

Talking Self-Care With Jon Strum – Episode 40 – Transcript

Being a care partner has been a central role in Jon Strum’s life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we’ll hear from Jon about the drastic effects of MS, not just in his wife’s life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.

Navigating the Complexities of Health Literacy and MS

Navigating the Complexities of Health Literacy and MS

Navigating the Complexities of Health Literacy and MS – Episode 38 – Transcript

This episode is brought to you by our sponsors Biogen, Genentech, and Novartis Pharmaceuticals. Today we’re featuring Psychologist Roz Kalb, Neurologist Lilyana Amezcua, and Shawn Feliciano. We’ll discuss how ethnicity and health literacy has shaped Shawn’s MS journey and what self-advocacy tools she employs to live her best life. We’ll also hear from Lilyana about what makes MS in the Hispanic and Latino communities unique, and the research being conducted to better understand MS in this space.

Managing Bowel and Bladder Symptoms

Managing Bowel and Bladder Symptoms

Managing Bowel and Bladder Symptoms – Episode 37 – Transcript

Some of the most challenging symptoms in MS can be bowel and bladder-related issues. Join us as we talk to our guests, Randy and Sue, about the bowel and bladder-related challenges Randy has experienced since his MS diagnosis, the management strategies they have found useful and suitable for their lifestyle, and the importance of self-advocacy.

For additional resources on bowel and bladder symptoms, please visit our website at the following link: https://www.cando-ms.org/online-resources/bowel-and-bladder.

Coping With COVID-19 Isolation and Unpredictability

Coping With COVID-19 Isolation and Unpredictability

Coping With COVID-19 Isolation and Unpredictability – Episode 36 – Transcript

Isolation and fear of the unknown are not new for the MS community, however the pandemic has certainly challenged us more than ever. Hear from our guest as she talks about how she’s coping with the unpredictability of COVID-19.

Finding Your Voice: Part 2

Finding Your Voice: Part 2

Finding Your Voice: Part 2 – Episode 35 – Transcript

Living with MS may constantly challenge you to advocate for yourself and your needs. This can be especially difficult when combined with additional barriers such as racial and socioeconomic disparities in health care. But you can find your voice! Tyler Campbell and Dr. Mitzi Joi Williams share advice and empowerment to speak up and be heard.