Tag Archives: Multiple Sclerosis

Embracing Carers: Caring and Curating – A Support Partner’s Journey



Embracing Carers: Caring and Curating – A Support Partner’s Journey – Episode 41 – Transcript

No one has it all figured out—and that’s OK! In today’s podcast, hear one support partner’s journey as she has navigated life in “the sandwich generation,” caring for her husband with MS, daughter, and parents. It’s not without its challenges, but curating her family’s life with MS has allowed Cindy to focus on what’s always been there: loyalty, love, and friendship.


Embracing Carers: Talking Self-Care With Jon Strum



Embracing Carers: Talking Self-Care With Jon Strum – Episode 40 – Transcript

        

Being a care partner has been a central role in Jon Strum’s life. His experiences led him to become an MS advocate and start the RealTalk MS podcast. Today, we’ll hear from Jon about the drastic effects of MS, not just in his wife’s life, but his own. Reflecting on the importance of self-care, he shares his advice and encouragement for other support partners.


Navigating the Complexities of Health Literacy and MS



Navigating the Complexities of Health Literacy and MS – Episode 38 – Transcript

This episode is brought to you by our sponsors Biogen, Genentech, and Novartis Pharmaceuticals. Today we’re featuring Psychologist Roz Kalb, Neurologist Lilyana Amezcua, and Shawn Feliciano. We’ll discuss how ethnicity and health literacy has shaped Shawn’s MS journey and what self-advocacy tools she employs to live her best life. We’ll also hear from Lilyana about what makes MS in the Hispanic and Latino communities unique, and the research being conducted to better understand MS in this space.


Managing Bowel and Bladder Symptoms



Managing Bowel and Bladder Symptoms – Episode 37 – Transcript

Some of the most challenging symptoms in MS can be bowel and bladder-related issues. Join us as we talk to our guests, Randy and Sue, about the bowel and bladder-related challenges Randy has experienced since his MS diagnosis, the management strategies they have found useful and suitable for their lifestyle, and the importance of self-advocacy.

For additional resources on bowel and bladder symptoms, please visit our website at the following link: https://www.cando-ms.org/online-resources/bowel-and-bladder.


Coping With COVID-19 Isolation and Unpredictability



Coping With COVID-19 Isolation and Unpredictability – Episode 36 – Transcript

Isolation and fear of the unknown are not new for the MS community, however the pandemic has certainly challenged us more than ever. Hear from our guest as she talks about how she’s coping with the unpredictability of COVID-19.


Finding Your Voice: Part 2



Finding Your Voice: Part 2 – Episode 35 – Transcript

Living with MS may constantly challenge you to advocate for yourself and your needs. This can be especially difficult when combined with additional barriers such as racial and socioeconomic disparities in health care. But you can find your voice! Tyler Campbell and Dr. Mitzi Joi Williams share advice and empowerment to speak up and be heard.


Finding Empowerment Through Self-Care and Accommodations



Finding Empowerment Through Self-Care and Accommodations – Episode 32 – Transcript

Diagnosed with MS her junior year of high school, Czarina discusses the challenges that come with becoming an adult all while navigating the challenges of Multiple Sclerosis. Listen to her discussion with mental health professional, Samantha Domingo as they talk about exploring accommodations and finding the best resources for support. Czarina shares her thoughts on how she cares for herself to make sure she is living the best life possible as a young adult with MS.


Advocating For Yourself Through Life Transitions



Advocating For Yourself Through Life Transitions – Episode 31 – Transcript

This episode features psychologist Meghan Beier and MS advocate Julie Stamm. The two discuss Julie’s diagnosis and the importance of advocating for yourself. We’ll talk about life changes through work, family, and symptoms. And, we’ll also hear about the children’s book that Julie wrote titled “Some Days We…”


Resilience: Finding Your Strengths and Staying Positive



Resilience: Finding Your Strengths and Staying Positive – Episode 30 – Transcript

Listen to an in-depth discussion about resilience in all areas of life. Karla Ramirez, person living with MS, and psychologist Linda Trettin discuss topics ranging from relationships and disclosure to self-care. Karla and Linda dive into challenges presented in everyone’s daily lives and how MS can make them look a little different, listen in on various strategies and coping mechanisms that may work for you to help you stay resilient!


Embracing Carers: Supporting a Spouse; Supporting Yourself



Embracing Carers: Supporting a Spouse; Supporting Yourself – Episode 28 – Transcript

Are you someone who provides support to a loved one living with MS?  As a support partner, you often focus solely on the needs of your loved one with MS, but it’s important to recognize the unique needs support partners have, too. How can you ensure that both you and your loved one living with MS have their needs addressed? What strategies lead to a successful partnership while navigating the challenges of MS?

In this podcast, you’ll hear from two support partners, Matt and Warren, as they share their experiences. They’ll discuss how roles evolve over time and the importance of supporting yourself while supporting your loved one with MS. This discussion will be led by psychologist Roz Kalb.