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My MS Story

My MS Story

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My MS Story– Episode 183 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Ashley Ratcliff Lundy as we dive into the personal journeys of living with Multiple Sclerosis (MS) as we share unique stories of diagnosis, the emotional rollercoaster that follows, and how perspectives on life have shifted since that moment. From the first signs of MS to the life-changing diagnosis, our guest speaks about challenges, the feelings of uncertainty, fear, and hope, while hearing the lessons they’ve learned along the way. With honesty and resilience, we discuss how to redefine goals, priorities, and outlook on life, offering valuable advice to those newly diagnosed. Tune in for an inspiring conversation on adapting to change, embracing strength, and finding a renewed sense of purpose in the face of MS.

A special thank you to our generous sponsor Novartis.

  • Poppy + Monarch, E-commerce business that supports the chronically ill community
  • Jesus Year, The self-help memoir Ashley wrote about her MS diagnosis
  • We Are ILL, The patient advocacy organization

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any service, or diet associated with the content of this program.

Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future

Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future

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Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future– Episode 182 – Transcript

In this episode, we join our host Stephanie Buxhoeveden and two special guests Emily Blosberg with Oscar the Monkey and Harvard Neurology professor Tanuja Chitnis. Together we explore the complexities of pediatric multiple sclerosis and how it differs from the adult form of the disease. We’ll dive into when pediatric MS is typically diagnosed and highlight the early signs that parents and what to watch for. Beyond medical treatment, managing MS as a child can be particularly challenging. We share valuable advice for families on navigating school, sports, and social life, while emphasizing the importance of emotional support and accommodations. We take a look at the future of pediatric MS research, discussing advancements in clinical trials, potential new therapies, and ongoing studies to improve outcomes for children and teenagers with MS.

Tune in for an informative and hopeful discussion about pediatric MS, its challenges, and what’s ahead for young patients.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Aging with MS: Navigating the Journey

Aging with MS: Navigating the Journey

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Aging with MS: Navigating the Journey– Episode 180 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Le Hua as we explore the unique experiences of living with multiple sclerosis as we age.  Whether you’re newly diagnosed or have been living with MS for years, this episode provides the support, inspiration, and knowledge you need to embrace the journey ahead. Tune in as we navigate the road to growing older with MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Hope in Innovation: Exploring CAR-T Cell Therapy for MS

Hope in Innovation: Exploring CAR-T Cell Therapy for MS

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Hope in Innovation: Exploring CAR-T Cell Therapy for MS – Episode 178 – Transcript

Join host Dr. Stephanie Buxhoeveden, someone living with multiple sclerosis and a dedicated clinician and researcher. In this episode, she welcomes Dr. Gregory Wu, who is making significant strides in MS research, particularly in CAR-T cell therapy. Join us as they dive into an engaging conversation about Dr. Wu’s work, his experiences in the field, and what the future may hold for MS treatments. Don’t miss this opportunity to learn and regain hope in upcoming MS research!

Thank you to Bristol Myers Squibb and Kyverna for their support of this podcast episode.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Taking Control: Understanding and Managing MS Progression

Taking Control: Understanding and Managing MS Progression

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Taking Control: Understanding and Managing MS Progression– Episode 176 – Transcript

In this empowering episode, host Stephanie Buxhoeveden connects with MS advocate and author Julie Stamm. Join us as we explore the complexities of the disease process, unpacking what it means to live with progressive MS.  Julie shares her personal journey, insights on smoldering MS, and practical strategies for regaining control. Whether you’re living with MS or supporting someone who is, this conversation offers hope, resilience, and valuable knowledge to help you navigate the challenges of MS disease progression.

Thank you to Sanofi for their support of this podcast episode.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Occupational Therapy: Redesigning Your Life With MS

Occupational Therapy: Redesigning Your Life With MS

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Occupational Therapy: Redesigning Your Life With MS– Episode 175 – Transcript

In this episode, host Stephanie Buxhoeveden sits down with occupational therapist Rebecca Cunningham to explore the impact of MS on the various aspects of our lives including work, school, and parenting with MS. Together, they will delve into how MS affects daily routines and pursuits and discuss how an occupational therapist can offer support. While we often strive to maximize productivity and efficiency, this episode highlights the importance of pacing tasks and offers tips for effective time and energy management strategies.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Current Research Updates on Rehabilitation in MS

Current Research Updates on Rehabilitation in MS

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Current Research Updates on Rehabilitation in MS – Episode 174 – Transcript

In this episode, host Stephanie Buxhoeveden sits down with Dr. Kathy Zackowski, who brings two decades of patient care experience and a strong background in MS research. They’ll explore the latest developments in MS rehabilitation, discussing how it can impact various aspects of life, how to choose the right physical therapist, and the exciting opportunities for participating in rehabilitation studies.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Intermittent Fasting and MS

Intermittent Fasting and MS

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Intermittent Fasting and MS – Episode 170 – Transcript

In this episode we host guest Dr. Samantha Roman who is not only a neurologist but also lives with MS. Hear more about the exciting topic of Intermittent Fasting. What is intermittent fasting? Is intermittent fasting safe for people with MS? What do we know about gut health and MS? Listen in to learn the answers to these questions and more. We’ll go into detail on the different methods and benefits of intermittent fasting and tips on how to get started.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

The National MS Brain Bank: Advancing Research

The National MS Brain Bank: Advancing Research

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The National MS Brain Bank: Advancing Research – Episode 173 – Transcript

In this episode, host Stephanie Buxhoeveden talks in detail with Dr. Claire Riley about the crucial role of the National MS Brain Bank in unraveling the complexities of Multiple Sclerosis through detailed Central Nervous System tissue research. It highlights the importance of this unique resource in advancing our understanding and treatment of MS.

Health Insurance and MS: Breaking Down Benefits

Health Insurance and MS: Breaking Down Benefits

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Health Insurance and MS: Breaking Down Benefits – Episode 172 – Transcript

Join host Stephanie Buxhoeveden alongside nurse and certified case manager Judy Gulley as they explore the complexities of health insurance. From different insurance types to managing costs and benefits, it can all be confusing.  Nurse Judy breaks it all down and provides insights into which options might work best for you.  Stephanie also shares her own experiences navigating insurance while living with MS, providing real-life examples. Tune in for practical advice and valuable resources.