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Unpacking MS Progression and BTK Inhibitors

Unpacking MS Progression and BTK Inhibitors

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Unpacking MS Progression and BTK Inhibitors – Episode 194

In this episode, we will have honest and hopeful conversation about two of the biggest topics in multiple sclerosis today, progression and the next major frontier in treatment: BTK inhibitors. They unpack what makes BTK inhibitors so unique, how they work inside immune cells and the brain, and why they could represent a game-changing step in the MS community. We will also explore how to recognize signs of MS progression, tell the difference between true disease worsening and deconditioning, and have more meaningful conversations with your care team about changes you’re noticing.

Whether you’re living with MS, caring for someone who is, or following the latest research, this episode will leave you informed, empowered, and hopeful about what’s ahead.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program

Speech-Language Pathology and MS: Support for Thinking, Communication, and Daily Life

Speech-Language Pathology and MS: Support for Thinking, Communication, and Daily Life

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Speech-Language Pathology and MS: Support for Thinking, Communication, and Daily Life – Episode 192

Think speech therapy is just for slurred speech or swallowing? Think again. In this episode, host Stephanie Buxhoeveden chats with Speech Language Pathologist Lauren Schwabish about how speech-language pathologists support people with MS in managing thinking, memory, planning, and communication. They explore real-life strategies like the “Four P’s,” talk workplace tips, and explain why proactive care matters.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program

Navigating MS Together: A Patient’s Journey and Her Neurologist’s Insight

Navigating MS Together: A Patient’s Journey and Her Neurologist’s Insight

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Navigating MS Together: A Patient’s Journey and Her Neurologist’s Insight – Episode 191 – Transcript

In this episode, we explore what it’s really like to be newly diagnosed with MS through the personal story of Fran Peed, who went from MS advocate to MS patient. Fran reflects on the first two years of living with MS — a period of uncertainty, adjustment, and learning how to manage both the medical and emotional sides of the diagnosis. Joining her is Dr. Michelle Betz, Fran’s neurologist and a specialist in multiple sclerosis at Sentara Neurology Specialists. Together, they reflect on building a trusting care relationship, navigating the early decisions after diagnosis, and learning how to live well with MS — not just manage it. Whether you’re newly diagnosed or supporting someone who is, this conversation offers honesty, support, and hope.

This podcast episode was created in collaboration with Novartis.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.

Addressing Swallowing Difficulties and Nutritional Deficiencies in MS

Addressing Swallowing Difficulties and Nutritional Deficiencies in MS

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Addressing Swallowing Difficulties and Nutritional Deficiencies in MS – Episode 190

Swallowing issues and nutrition changes are common in MS but often overlooked. Host Stephanie Buxhoeveden is joined by speech-language pathologist Dr. Corinne Jones and dietitian Carla Cos to explore how MS affects eating—and what you can do about it. Learn practical strategies to stay safe, eat well, and adapt to changing symptoms without giving up the joy of food.

Thank you to the generous support of our sponsors of this podcast episode, including Kathleen C Moore Foundation, Genentech, and Novartis.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.

 

Additional Resources:

Weight Loss Drugs and MS: What You Should Know

Weight Loss Drugs and MS: What You Should Know

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Weight Loss Drugs and MS: What You Should Know – Episode 189

Weight-loss medications are gaining attention—but how do they fit into life with MS? In this episode, host Dr. Stephanie Buxhoeveden talks with Dr. Alise Carlson from the Cleveland Clinic about how these medications work, their potential benefits and risks for people with MS, and what to consider when it comes to hormones, bone health, and access. You’ll walk away with practical insights and questions to bring to your healthcare provider if you’re considering medication as part of your weight management journey.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program

Disclosing MS: One Advocate’s Journey from Private to Public

Disclosing MS: One Advocate’s Journey from Private to Public

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Disclosing MS: One Advocate’s Journey from Private to Public – Episode 188

In this episode, host Stephanie Buxhoeveden talks with Kenneth Bandler, a longtime communications professional and MS advocate, about his deeply personal journey with multiple sclerosis and the decision to disclose his diagnosis—first to close family, and years later, to his workplace. Ken shares how he kept his MS private for over a decade, the emotional and professional considerations behind his decision, and the pivotal moment when he finally told his boss. He also reflects on the support he received, the power of storytelling, and how going public ultimately brought relief and connection. This conversation offers insight and encouragement to anyone navigating career and disclosure decisions with MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product or service associated with the content of this program.

Taking the Next Step With Confidence: Navigating Foot Drop and Mobility with MS

Taking the Next Step With Confidence: Navigating Foot Drop and Mobility with MS

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Taking the Next Step With Confidence: Navigating Foot Drop and Mobility with MS – Episode 187 – Transcript

In this episode, we are joined by physical therapist Samantha Balistreri and orthotist Spencer Van Wagenen to break down what foot drop is, what devices like AFOs and FES can do for you. Then we will deep dive into how PTs and orthotists work together to find the right support—without sacrificing style or independence.

From early signs to energy-saving tips, supportive shoes and where to get them, this episode is full of practical guidance, encouragement to advocate for your mobility and explaining that using a support is not giving up.

Link from episode:  Equipment Distribution Program

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Facing MS: From First Symptoms to First Steps

Facing MS: From First Symptoms to First Steps

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Facing MS: From First Symptoms to First Steps– Episode 186 – Transcript

In this episode, we explore how the landscape of being newly diagnosed with multiple sclerosis (MS) has transformed over the last decade. Thanks to advances in MRI technology, biomarkers, and updated diagnostic criteria, more people are being diagnosed earlier.  We break down how diagnosis and treatment options have improved across the board.  We also dive into why getting a diagnosis can still take time, and why accuracy is so crucial, even when emotions are high. You’ll hear practical tips on building a strong relationship with your MS care team, how to know when it might be time for a second opinion, and how to navigate that often overwhelming first treatment decision

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Finding Your Calm: Mindfulness and MS

Finding Your Calm: Mindfulness and MS

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Finding Your Calm: Mindfulness and MS– Episode 185 – Transcript

In this powerful and insightful episode, host Stephanie welcomes mindfulness expert Robert Simpson to explore the vital connection between stress, mindfulness, and multiple sclerosis.  They also dive into self-compassion, the stress care partners face, and how mindfulness can foster empowerment and deeper connection. Whether you’re new to mindfulness or looking for fresh insights, this episode offers practical takeaways and hope for anyone navigating life with MS.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

My MS Story

My MS Story

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My MS Story– Episode 183 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Ashley Ratcliff Lundy as we dive into the personal journeys of living with Multiple Sclerosis (MS) as we share unique stories of diagnosis, the emotional rollercoaster that follows, and how perspectives on life have shifted since that moment. From the first signs of MS to the life-changing diagnosis, our guest speaks about challenges, the feelings of uncertainty, fear, and hope, while hearing the lessons they’ve learned along the way. With honesty and resilience, we discuss how to redefine goals, priorities, and outlook on life, offering valuable advice to those newly diagnosed. Tune in for an inspiring conversation on adapting to change, embracing strength, and finding a renewed sense of purpose in the face of MS.

A special thank you to our generous sponsor Novartis.

  • Poppy + Monarch, E-commerce business that supports the chronically ill community
  • Jesus Year, The self-help memoir Ashley wrote about her MS diagnosis
  • We Are ILL, The patient advocacy organization

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any service, or diet associated with the content of this program.