Category: Overcoming Inequities in MS

My MS Story

My MS Story

By |

Podcast: Play in new window | Download (Duration: 34:32 — 79.0MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

My MS Story– Episode 183 – Transcript

In this episode we join our host Stephanie Buxhoeveden and special guest Ashley Ratcliff Lundy as we dive into the personal journeys of living with Multiple Sclerosis (MS) as we share unique stories of diagnosis, the emotional rollercoaster that follows, and how perspectives on life have shifted since that moment. From the first signs of MS to the life-changing diagnosis, our guest speaks about challenges, the feelings of uncertainty, fear, and hope, while hearing the lessons they’ve learned along the way. With honesty and resilience, we discuss how to redefine goals, priorities, and outlook on life, offering valuable advice to those newly diagnosed. Tune in for an inspiring conversation on adapting to change, embracing strength, and finding a renewed sense of purpose in the face of MS.

A special thank you to our generous sponsor Novartis.

  • Poppy + Monarch, E-commerce business that supports the chronically ill community
  • Jesus Year, The self-help memoir Ashley wrote about her MS diagnosis
  • We Are ILL, The patient advocacy organization

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any service, or diet associated with the content of this program.

Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future

Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future

By |

Podcast: Play in new window | Download (Duration: 31:22 — 71.8MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

Navigating Pediatric MS – Challenges, Treatment, and Hope for the Future– Episode 182 – Transcript

In this episode, we join our host Stephanie Buxhoeveden and two special guests Emily Blosberg with Oscar the Monkey and Harvard Neurology professor Tanuja Chitnis. Together we explore the complexities of pediatric multiple sclerosis and how it differs from the adult form of the disease. We’ll dive into when pediatric MS is typically diagnosed and highlight the early signs that parents and what to watch for. Beyond medical treatment, managing MS as a child can be particularly challenging. We share valuable advice for families on navigating school, sports, and social life, while emphasizing the importance of emotional support and accommodations. We take a look at the future of pediatric MS research, discussing advancements in clinical trials, potential new therapies, and ongoing studies to improve outcomes for children and teenagers with MS.

Tune in for an informative and hopeful discussion about pediatric MS, its challenges, and what’s ahead for young patients.

Disclaimer: This podcast provides general educational information. Can Do MS does not endorse, promote, or recommend any product, service, or diet associated with the content of this program.

Diversity in MS Research and Clinical Trials

Diversity in MS Research and Clinical Trials

By |

Podcast: Play in new window | Download (Duration: 16:27 — 37.6MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

Diversity in MS Research and Clinical Trials – Episode 168 – Transcript –

In this episode we hear from Neurologist Jacqueline Rosenthal and host Stephanie Buxhoeveden about the need for diversity in MS research and clinical trials. We talk about why diversity is important and what is being done to fill the gaps in care and MS research. And most importantly, we talk about how you can get involved!

Race, Representation, and Redefining What Sick Looks Like

Race, Representation, and Redefining What Sick Looks Like

By |

Podcast: Play in new window | Download (Duration: 23:51 — 21.8MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

Race, Representation, and Redefining What Sick Looks Like – Episode 49 – Transcript

Victoria Reese is Co-Founder and CEO of We Are Ill, a nonprofit organization for Black women with MS that provides support, sisterhood, and a space to learn from one another (something she couldn’t find upon her own MS diagnosis). Today, Victoria fosters this community and helps others become a “professional patient.” By being as knowledgeable as possible about your illness, you can be an active decision-maker in the healthcare setting, and one day feel empowered to say “I have MS but MS does not have me.”

Learn more about We Are ILL.

Learn more about TAKE CHARGE- Uncharted Territory.

Navigating the Complexities of Health Literacy and MS

Navigating the Complexities of Health Literacy and MS

By |

Podcast: Play in new window | Download (Duration: 19:55 — 18.2MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

Navigating the Complexities of Health Literacy and MS – Episode 38 – Transcript

This episode is brought to you by our sponsors Biogen, Genentech, and Novartis Pharmaceuticals. Today we’re featuring Psychologist Roz Kalb, Neurologist Lilyana Amezcua, and Shawn Feliciano. We’ll discuss how ethnicity and health literacy has shaped Shawn’s MS journey and what self-advocacy tools she employs to live her best life. We’ll also hear from Lilyana about what makes MS in the Hispanic and Latino communities unique, and the research being conducted to better understand MS in this space.

Finding Your Voice: Part 2

Finding Your Voice: Part 2

By |

Podcast: Play in new window | Download (Duration: 18:53 — 17.2MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

Finding Your Voice: Part 2 – Episode 35 – Transcript

Living with MS may constantly challenge you to advocate for yourself and your needs. This can be especially difficult when combined with additional barriers such as racial and socioeconomic disparities in health care. But you can find your voice! Tyler Campbell and Dr. Mitzi Joi Williams share advice and empowerment to speak up and be heard.

Finding Your Voice: Part 1

Finding Your Voice: Part 1

By |

Podcast: Play in new window | Download (Duration: 23:47 — 21.7MB) | Embed

Subscribe: Apple Podcasts | Spotify | iHeartRadio | Podchaser | RSS | More

Finding Your Voice: Part 1 – Episode 34 – Transcript

Tyler Campbell was following in his father’s legacy and on the verge of a pro football career when he was diagnosed with multiple sclerosis. You might think this diagnosis would take away so much from a young athlete, but instead, it helped Tyler find new purpose. Listen to the latest episode of the Can Do MS podcast to hear how Tyler Campbell found his voice as an MS advocate.