Category: Overcoming Inequities in MS

Diversity in MS Research and Clinical Trials

Diversity in MS Research and Clinical Trials

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Diversity in MS Research and Clinical Trials – Episode 168 – Transcript –

In this episode we hear from Neurologist Jacqueline Rosenthal and host Stephanie Buxhoeveden about the need for diversity in MS research and clinical trials. We talk about why diversity is important and what is being done to fill the gaps in care and MS research. And most importantly, we talk about how you can get involved!

Race, Representation, and Redefining What Sick Looks Like

Race, Representation, and Redefining What Sick Looks Like

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Race, Representation, and Redefining What Sick Looks Like – Episode 49 – Transcript

Victoria Reese is Co-Founder and CEO of We Are Ill, a nonprofit organization for Black women with MS that provides support, sisterhood, and a space to learn from one another (something she couldn’t find upon her own MS diagnosis). Today, Victoria fosters this community and helps others become a “professional patient.” By being as knowledgeable as possible about your illness, you can be an active decision-maker in the healthcare setting, and one day feel empowered to say “I have MS but MS does not have me.”

Learn more about We Are ILL.

Learn more about TAKE CHARGE- Uncharted Territory.

Navigating the Complexities of Health Literacy and MS

Navigating the Complexities of Health Literacy and MS

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Navigating the Complexities of Health Literacy and MS – Episode 38 – Transcript

This episode is brought to you by our sponsors Biogen, Genentech, and Novartis Pharmaceuticals. Today we’re featuring Psychologist Roz Kalb, Neurologist Lilyana Amezcua, and Shawn Feliciano. We’ll discuss how ethnicity and health literacy has shaped Shawn’s MS journey and what self-advocacy tools she employs to live her best life. We’ll also hear from Lilyana about what makes MS in the Hispanic and Latino communities unique, and the research being conducted to better understand MS in this space.

Finding Your Voice: Part 2

Finding Your Voice: Part 2

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Finding Your Voice: Part 2 – Episode 35 – Transcript

Living with MS may constantly challenge you to advocate for yourself and your needs. This can be especially difficult when combined with additional barriers such as racial and socioeconomic disparities in health care. But you can find your voice! Tyler Campbell and Dr. Mitzi Joi Williams share advice and empowerment to speak up and be heard.

Finding Your Voice: Part 1

Finding Your Voice: Part 1

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Podcast: Play in new window | Download (Duration: 23:47 — 21.7MB) | Embed

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Finding Your Voice: Part 1 – Episode 34 – Transcript

Tyler Campbell was following in his father’s legacy and on the verge of a pro football career when he was diagnosed with multiple sclerosis. You might think this diagnosis would take away so much from a young athlete, but instead, it helped Tyler find new purpose. Listen to the latest episode of the Can Do MS podcast to hear how Tyler Campbell found his voice as an MS advocate.